Saturday, January 10, 2009

Update on Ryan's week

Ryan has been enjoying a week without chemo at home. He has been feeling well, and had the opportunity to watch the National Championship game with a couple buddies. On Friday, he was back at Children's hospital and commented that it was his most enjoyable visit to the hospital. He got to wear a blue badge, he was a visitor! Joe Friend, another kid his age that he met at a Blue Jackets game earlier in the year has had a relapse and Ryan wanted to go surprise him to lift his spirits. So in Ryan fashion, he called another friend of his and he and Jason Chimera went up to see Joe. Joe was surprised and seem to enjoy the time together. Ryan is looking forward to going to the Blue Jackets game this evening. Short term goals keep his spirits up and with his love for hockey, the Blue Jackets have given him a lot to look forward to. Ryan will be back at Children's on Monday for another round of chemo. This is the second time he has done this type, and the first time it was very tough on him. Please keep Ryan and all these kids in your prayers.

I am including a piece from a blog I have read. This is from a kid Ryan's age that fought the same type of cancer Ryan has. I think that it is an excellent analogy of life from a child so young.

Miles Levin
July 7, 2005

I went to the driving range the other day and I was thinking....

I was thinking how you start out with a big bucket full of golf balls, and you just start hitting away carelessly. You have dozens of them, each individual ball means nothing so you just hit, hit, hit. One ball gone is practically inconsequential when subtracted from your bottomless bucket. There are no practice swings or technique re-evaluations after a bad shot, because so many more tries remain. Yet eventually you start to have to reach down towards the bottom of the bucket to scavenge for another shot and you realize that tries are running out. Now with just a handful left, each swing becomes more meaningful. The right technique becomes more crucial, so between each shot you take a couple practice swings and a few deep breaths. There is a very strong need to end on a good note, even if every preceding shot was horrible, getting it right at the end means a lot. You know as you tee up your last ball, "This is my final shot, I want to crush this with perfection; "I must make this count." Limited quantities or limited time brings a new precious value and significance to anything you do. Live every day shooting as if it’s your last shot; I know I have to.
I found out today 5 year survival rates are just 20%.

Miles lost his fight in August of 2007. But he left a mark in the fight against childhood cancer, and certainly brought Rhabdomyosarcoma to the forefront with his exposure at CNN.



Nancy Levin said...

Hi there,

I'm Miles' mom. Thank you for including Miles' words and wisdom. Best to you as you ride this roller coaster.

Nancy Levin

Anonymous said...

Well said Brad, Ryan is in our prayers…Aunt Carol

Kyle Alfriend said...

Miles' words and thoughts are incredible. They were a source of encouragement on our long days and nights at Childrens.

Keep up the fight and refuse to lose!