Tuesday, July 8, 2008

Update and Conquer Childhood Cancer Act

Ryan has been enjoying his time out of the hospital. He wasn’t feeling very well at the beginning of the week but is improving as each day goes by. He is in the day clinic at Children’s today to get his standard labwork done.

Ryan wanted to make sure to thank you for all of the fundraising support over the last several months. Because of you, he was able to order his rehab treadmill and looks forward to getting it in about a week. We'll be sure to get a picture of Ryan on it to share with you all.

When we entered this new life in April, I began to do a lot of research on cancer, especially childhood cancers. It is devastating and there are not enough words to describe the trials that these children and their families face day in and day out. I found some statistics on Tyler Alfriend’s blog which is written by his dad, Kyle. Tyler has also been fighting this battle and is now is remission.

  • Less than 3% of all cancer funding is granted to pediatric cancers.
  • The first ever tissue bank to study teen cancers is just now in the planning stages.
  • In the past 25 years only one new drug has been developed for pediatric cancer.
  • Teens and young adults (age 15-22) is the only age group where cancer survival rates are decreasing, and have for the past 25 years.
  • The cause of most childhood cancers is still unknown.
  • Due to the lack of new drugs, most pediatric cancer treatments are little more than mega doses of adult chemo treatments.
The Conquer Childhood Cancer Act was just approved by the House and was renamed The Caroline Pryce Walker Conquer Childhood Cancer Act of 2008. Caroline, the daughter of Representative Deborah Pryce, lost her battle with cancer at age 9. The bill authorizes $30 million to go towards childhood cancer research. This is the amount that we spend every 2 1/2 hours on the war in Iraq. This bill will go to the Senate later this summer. But there are many Senators that are either opposing it or blocking it. Why??? That is my big question. If it is yours too, please tell Washington how you feel here:


And very important, please sign this petition:

You can read through the comments of so many others impacted by this terrible disease and tell everyone you know to go and sign this petition as well. Every little bit helps. If you know me, you know that I’m not a very political person at all. But, this is something that is so important and this is a chance for us to do our part to try and stop this nightmare from happening to so many other children and families.


1 comment:

Anonymous said...

I am truly amazed at Ryan's strength and courage throughout this fight. I pray for him daily, as well as check the website to see how he is doing.
Thank you to Aunt Amy and Uncle Barry for your blogging and pictures.
Thanks Amy for the info today. I signed the petition and will send a letter to the senator's of our state.
The statistics are staggering!
It is times like these were we must trust in God.
Many blessings,
Christine DeSanti