Update Sun. evening

I don't have much further information from earlier. But, I do know that Ryan received a unit of blood this afternoon. Ryan's blood counts were a little low today. He needs to be at a 10 to continue with the surgery tomorrow and he was at a 7.9 today. So, they were going to evaluate tonight whether or not he'd require another unit of blood.

Ryan is apprehensive so please pray for his peace of mind as they [hopefully] take him into surgery for his port and do the biopsy.

Thank you and God Bless,
Amy

Back at Children's Hospital

Ryan was re-admitted to Children's last night because he spiked a fever. They believe it is a bladder infection. Please pray that the infection can be cleared and his fever reduced. I'm not sure yet but I think it will impact whether Ryan has his surgery and biopsy tomorrow if they cannot get the infection under control. I'll post more details when I know.

Thank you again for your continual prayers,
Amy

Weekend Update

Ryan has had a great week at home. He is getting stronger each and every day. He’s been able to get up and down the stairs a few times as well…once was a result of the tornado warnings last Wednesday night. He had just made it upstairs to sleep in his own bed for the first time when the tornado sirens went off, so he decided to go to the basement...that's called forced re-hab! He made it!

Ryan will be going back to Children’s Hospital on Monday for surgery. They will be doing two procedures on him. First, they will take some bone marrow from his hips for biopsy. Secondly. they are putting a port put in his chest. The port will make the administration of medications much easier. As a result of the the port, Ryan’s pic lines will then be removed. This should also allow in to take showers. Tuesday will begin the next round of chemo. He will receive a chemo drip for 2 hours a day for 5 days. He is expected to remain in the hospital until next Sunday. Please pray that Ryan will not experience pain following the bone marrow biopsy. The first time he had this done mid-April, Ryan was in severe pain. We are hopeful that now his pain can be controlled especially since he has been under the Pain Management Team’s care for the last several months and they know his tolerance levels and which medications are more effective for him. Please also pray for Ryan during this round of chemo. Ryan experienced some very unpleasant side effects with this type of chemo the last time.

I spoke to Ryan and told him I was going to post an update today. He wants to thank everyone for everything they are doing for him..from all the visitors, the Skate for Ryan! event, the golf outing and the positive words of encouragement...it is all over-whelming to him, but extremely up-lifting! He is very grateful for all of the love and support. As a result of the fund raisers, Ryan is hoping to get a re-hab treadmill in a couple of weeks after he gets out of the hospital.

God Bless to all!

Ryan's Golf Outing and Wednesday Update

First of all, I have to say how wonderful Ryan’s Golf Outing was last Friday. We are so grateful to those of you that spent your day out there supporting Ryan. God blessed us with a beautiful day. The day was a great success. Ryan was able to hit the ceremonial first ball and spoke a few words to the crowd. Barry and I are hoping we can convert some of my video to this blog soon. Thank you so much again to Turnberry Golf Course and the many businesses and individuals who sponsored and donated items for the Golf Outing.

Ryan left the hospital after his 48 hour chemo drip late Thursday afternoon. He was able to stay for about half of the Golf Outing on Friday. And, he rested the remainder of the weekend. He felt some nausea but was still able to eat a little bit.

Ryan went back in to Children’s Monday afternoon for another chemo treatment that took a couple of hours and then he was back home. He is now home for the rest of the week. He was able to spend some time outdoors yesterday and fished out in his backyard with his grandpa.

The pictures from the Golf Outing are here and a link is on the right side of this page.

Thank you again for your prayers.
~Amy

Chemo - Day 1

I was able to see Ryan for a little bit this morning. He looked great. Day 1 of Chemo is almost over. So far, so good. Only 26 more hours to go. Ryan has been feeling pretty good so far. He was able to sleep all through the night. His goal is to get out of the hospital when the 48 hours are up around 2:30pm tomorrow. He is determined to be home and go to his Charity Golf Outing on Friday. Please send your thoughts and prayers his way that he can tolerate this round of Chemo and feel well enough to attend his Golf Outing. I know there are so many people that would love to see him there.


Ryan had a great time while he was home. He had a great appetite and just enjoyed relaxing and hanging out with his friends and family. There are new pictures up of Ryan's Father's Day with his Dad. I know my two boys just loved being able to see him at home and fish with him a little while.


Thank you for your prayers.
~Amy

Results Are In

Just wanted to give a quick update from Ryan's scans this week. The scans on the spine and leg came back clear...the tumors were not visible! (Go ahead and wipe those tears away, we all did!) We are so thankful for this blessing! The pelvic scan showed that the larger tumor had some reduction in size. The rest of the pelvis results revealed no new growth, but did not show a lot of shrinkage either.

We are thankful for all of your prayers...they are clearly working. Keep it up!

Ryan is going home!!

I have great news to share...Ryan is going home today after 57 days at Children’s Hospital for a “mental health break”! The doctors felt that the positives with this mental break outweigh the downside of the possibility of introducing infection while at home. Ryan will be home at his Dad's house through Monday or Tuesday. Then, he will go back into the hospital for 3-4 days next week for the 48 hour chemo drip. Ryan is doing great. He is really looking forward to being home for awhile.

The test results from yesterday aren’t back in their entirety as of yet. I’ll update more when they are.

Thank you for your continued prayers!
God Bless,
Amy